NIH Workshop: Rare Disease Day

Thursday, February 28, 2019 -
8:30am to 4:00pm

The National Institutes of Health (NIH), National Center for Advancing Translational Sciences (NCATS), announces the 2019 Rare Disease Day at NIH. The event will feature interactive panel discussions on collective research models for rare diseases, patient registries, rare cancer research initiatives, and "no disease left behind, no patient left behind." New this year will be a presentation of the first ever Zebbie award for the NCATS Rare Diseases are Not Rare! Challenge. Other highlights include posters and exhibits by rare disease groups and researchers as well as artwork, videos and NIH Clinical Center tours.

Guest speakers include NCATS Director Christopher P. Austin, M.D.; NIH Clinical Center CEO James K. Gilman, M.D.; and NCATS Office of Rare Diseases Research Director Anne R. Pariser, M.D.

Admission is free and open to the public. In association with Global Genes®, participants are encouraged to wear their favorite pair of jeans.

The day will start with a welcome session, and then move into 4 different panel sessions, each targeted at addressing a sector of rare disease treatment and research. Interested persons should register online. More information regarding the event, including a tentative agenda, can be found at this NIH page