Authorize appropriations of $31 million annually for fiscal years 2020 through 2024 for some programs, and $8 million annually for fiscal years 2020 through 2024 for ensuring laboratory quality and surveillance; and
Commission a study from the National Academy of Medicine to understand provisions of the uniform screening panel, including any barriers to receiving them, the process by which new conditions are added to the uniform screening panel, technological or scientific advancements pertaining to screening for new disorders or to make current screening more effective and less expensive, and recommendations for legislative or administrative actions relating to the uniform screening panel.
STAT – When babies are born, clinicians draw a drop of blood from their heels and analyze it for signs of dozens of diseases. But with the rise of sequencing technology, researchers have been investigating whether a deep dive into newborns’ DNA could uncover more diseases — and whether making such an endeavor routine would be worth it.
The Sacramento Bee - It’s a tiny prick in a newborn’s heel, but it could be life-changing. Starting last month, a rare but devastating genetic disease is now part of the routine blood screening given to all California babies shortly after birth.
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