Protecting Personal Health Data Act (S 1842, 116th Congress)

Policy Details

Policy Details

Originating Entity
Last Action
Referred to Committee
Date of Last Action
Jun 13 2019
Congressional Session
116th Congress
Date Introduced
Jun 13 2019
Publication Date
Jun 21 2019

SciPol Summary

The Protecting Personal Health Data Act (S 1842, 116th Congress) would call for bolstered consumer privacy protections for health data including genetic data and mental data. Specifically, the Act calls for the Department of Health and Human Services to coordinate with the Federal Trade Commission and other relevant federal agencies to draft regulations for improved privacy and security for consumers’ personal health data. These regulations would cover “consumer devices, services, applications, and software” including direct-to-consumer genetic testing services, technology intended to collect individuals’ personal health data, and social media services intended to collect individual’s personal health data.

Additionally, the Act calls for the establishment of the National Task Force on Health Data Protection to better analyze and evaluate techniques to ensure privacy of individuals’ health data.

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